A grieving mom embroiled in a bitter dispute with doctors over her 11-year-old daughter’s dying is preventing for solutions.
Melody Driscoll suffered excruciating ache earlier than dying from a posh medical situation at Kings College Hospital in June final 12 months.
In a bid to lastly get closure, mum Karina, from Thornton Heath, south London, has arrange a web based fundraising web page to rent a authorized group for an upcoming inquest.
She says doctors’ resolution to withdraw medicine used for ache aid triggered a pancreatitis which led to her ‘internally bleeding to death’.
Melody suffered from Rett Syndrome, a uncommon genetic dysfunction inflicting extreme psychological and bodily defects.
She suffered from common organ irritation and inner ruptures all through her physique, inflicting blood to stream out of her stoma and different orifices.
Karina, 37, advised Metro.co.uk her signs had been stored at bay by a mix of morphine, ketamine and steroids given to her whereas she was at Great Ormond Street Hospital.
She mentioned: ‘It would, in the long run, shorten her life nevertheless it meant that she might come dwelling and go to high school.
‘We wanted her to come off these drugs but we wanted to do it right, we wanted to do it where she was still well.’
She even had the prospect to fulfill Ed Sheeran a number of instances whereas she was in a greater situation.
The dad and mom accepted that TPN – a way of feeding fluids via linked tubes – might ultimately result in probably deadly liver harm.
But additionally they recognised that it helped her and so they needed Melody to have a great high quality of life for so long as attainable.
After transferring to Kings College Hospital in July 2017 to obtain remedy from a specialist liver physician, Melody’s household grew to become entangled in a authorized struggle over her treatment.
Karina claims doctors determined her painkillers weren’t wanted and that Melody’s writhing round, screaming, and signalling to painful elements of the physique was a ‘behavioural problem’.
She says she was even accused of fabricated or induced sickness – a uncommon type of abuse the place a dad or mum or carer exaggerates or causes signs of their youngster.
Since talking out, Karina says she has been contacted by 5 different dad and mom who declare they’ve had the identical accusation.
King’s College Hospital NHS Foundation Trust denied the accusations.
Melody’s dad and mom enlisted the assistance of Charles Da Silva, the lawyer who labored on the Charlie Gard case, to try to sue the hospital and resume their daughter’s treatment.
In December 2017 Croydon Council social employees threatened to place the girl in care to cease Karina and pa Nigel, 48, ‘obstructing her care’.
The native authority dropped the case a month later and apologised, however they then utilized in March 2018 for all medical selections to undergo the courtroom.
The dad and mom gave up and accepted that that they had no selection however to let Melody’s painkillers be steadily taken away.
Karina mentioned: ‘She would have died alone with no one around who knew her. We were literally forced to, we had no other option.’
‘Every time they lowered the medication, Melody’s signs would come again.’
She mentioned physician’s refusal to acknowledge how a lot the medicine helped her flew within the face of recommendation from employees at Great Ormond Street, Epsom Hospital, academics and carers.
After struggling critical signs, Melody was rushed into intensive care with what doctors thought was a gallstone in her bile duct.
Karina says doctors then found indicators of a pancreatitis and ended up perforating her bowel with a medical tube, inflicting extreme bleeding.
The mother-of-six added: ‘I was telling them all along that this is what would happen if they took away her medication.’
Other surgeons had been introduced in for an emergency operation however they had been unable to cease her bleeding.
Karina says one of many doctors advised her the stone was not obstructing something and wouldn’t have triggered a pancreatitis so that they left it inside.
Karina mentioned: ‘They literally closed her up and told us she only had 24 hours to live. We were absolutely hysterical.’
But regardless of the percentages, Melody stored on preventing for 11 extra weeks till she ultimately handed away.
Karina mentioned: ‘She was in our arms when she died. There was blood everywhere, literally everywhere.’
‘Every time we shut our eyes and fall asleep we see her bleeding in our arms.
‘I feel like it’s my fault, it’s my fault I allow them to take away the treatment.’
With an inquest set for March subsequent 12 months, the household at the moment are attempting to lift £8,000 for a barrister and £3,000 for an impartial medical professional with no connection to any hospitals.
Karina added: ‘I don’t need another kids to undergo like Melody did.
‘Melody’s life shouldn’t be in useless. It was like Melody’s life didn’t matter – and Melody mattered.’
A spokesperson for King’s College Hospital NHS Foundation Trust advised Metro.co.uk: ‘We do not recognise the allegations made by Melody’s household.
‘While we recognise that this is difficult for Melody’s dad and mom, all selections taken with reference to her care had been made by professional medical groups in addition to community-based providers and in one of the best pursuits of the affected person.’
Great Ormond Street Hospital have been contacted for remark.